{"id":600,"date":"2018-12-09T16:02:58","date_gmt":"2018-12-09T15:02:58","guid":{"rendered":"http:\/\/www.spiritualemergencenetwork.org\/slovakia\/?p=600"},"modified":"2018-12-09T16:04:29","modified_gmt":"2018-12-09T15:04:29","slug":"600","status":"publish","type":"post","link":"https:\/\/www.spiritualemergencenetwork.org\/slovakia\/blog\/2018\/12\/09\/600\/","title":{"rendered":"V\u00fdzva na \u00fa\u010das\u0165 v prieskume o bolesti a stigme."},"content":{"rendered":"

BOLES\u0164 A STIGMA: EXISTUJE TU S\u00daVISLOS\u0164?<\/p>\n

SEN Slovensko a \u010cesko v spolupr\u00e1ci s PAE sa stalo s\u00fa\u010das\u0165ou celoeur\u00f3pskej iniciat\u00edvy prieskumu sk\u00famaj\u00faceho boles\u0165 a stigmu.<\/p>\n

Mil\u00ed priatelia,<\/p>\n

 <\/p>\n

Pain Alliance Europe (PAE)- organiz\u00e1cia na celoeur\u00f3pskej \u00farovni\u00a0s dosahom na EU,\u00a0v spolupr\u00e1ci s na\u0161ou organiz\u00e1ciou \u201eSEN Slovensko a \u010cesko\u201c organizuje na Slovensku\u00a0a\u00a0v \u010cR prieskum zameran\u00fd na existenciu mo\u017enej stigmy bolesti u pacientov, ktor\u00ed trpia preva\u017ene chronickou boles\u0165ou.<\/p>\n

Ni\u017e\u0161ie uv\u00e1dzame list prezidenta PAE- Joopa Van Griensvena,\u00a0adresovan\u00fd V\u00e1m,\u00a0s prosbou o pomoc pri \u0161\u00edren\u00ed tohto prieskumu\u00a0(za \u00fa\u010delom dosiahnutia \u010do najvy\u0161\u0161ieho po\u010dtu respondentov). V\u00fdskumu sa m\u00f4\u017ee z\u00fa\u010dastni\u0165 ktoko\u013evek, kto trp\u00ed na ak\u00fako\u013evek \u00a0boles\u0165, ktor\u00e1 niekedy doslova strp\u010duje \u017eivot a nedovo\u013euje\u00a0jednotlivcom\u00a0z\u00e1paja\u0165 sa do \u017eivota plnhodnot\u00fdm sp\u00f4sobom (migr\u00e9na, bolesti v kr\u00ed\u017eoch, syndr\u00f3m chronickej \u00fanavy, reumatick\u00e9 a in\u00e9 z\u00e1palov\u00e9 bolesti, at\u010f.)<\/p>\n

Ak tak\u00fdchto \u013eud\u00ed \u00a0pozn\u00e1te, pros\u00edm zdie\u013eajte s nimi odkazy na tento prieskum, ktor\u00e9 s\u00fa k dispoz\u00edcii na konci tejto v\u00fdzvy.<\/p>\n

Origin\u00e1l listu prezidenta PAE sa nach\u00e1dza v pr\u00edlohe.<\/p>\n

\u010eakujeme za pozornos\u0165. R\u00e1tame s Va\u0161ou pomocou.<\/p>\n

Zdie\u013eame n\u00e1zor, \u017ee aj pacienti trpiaci boles\u0165ou maj\u00fa \u010do poveda\u0165 a ich slovo m\u00e1 v\u00e1hu.<\/p>\n

S \u00factou,<\/p>\n

J\u00falia\u00a0Sellers<\/p>\n

Zakladate\u013eka \u201eSEN Slovensko a \u010cesko\u201c<\/p>\n

http:\/\/www.spiritualemergencenetwork.org\/slovakia<\/u><\/a><\/p>\n

 <\/p>\n

p.s. Odkazy na slovensk\u00fd a \u010desk\u00fd prieskum n\u00e1jdete na konci listu.\u00a0Tieto odkazy je potrebn\u00e9 \u0161\u00edri\u0165 medzi pacientmi a ostatn\u00fdmi \u013eu\u010fmi, ktor\u00ed trpia akouko\u013evek boles\u0165ou. Odkazy umo\u017enia \u013eu\u010fom z\u00fa\u010dastni\u0165 sa online prieskumu potom, ako na ne klikn\u00fa, respekt\u00edve<\/b><\/u><\/strong>\u00a0ako<\/b><\/u><\/strong>\u00a0ich skop\u00edruj\u00fa a vlo\u017eia do novej str\u00e1nky.<\/b><\/u><\/strong><\/p>\n

T\u00ed, ktor\u00ed trp\u00edte boles\u0165ou, nev\u00e1hajte a z\u00fa\u010dastnite sa nasledovn\u00e9ho kr\u00e1tkeho prieskumu: <\/b><\/u><\/strong><\/p>\n

\u00a0<\/b><\/u><\/strong><\/p>\n

Odkaz na prieskum v sloven\u010dine: https:\/\/www.surveymonkey.co.uk\/r\/Slovensko-PAE-bolest-a-stigma<\/u><\/a><\/p>\n

 <\/p>\n

 <\/p>\n

Odkaz na prieskum v \u010de\u0161tine: https:\/\/www.surveymonkey.co.uk\/r\/Cestina-PAE-bolest-a-stigma<\/u><\/a><\/p>\n

 <\/p>\n

Nasleduje priama v\u00fdzva prezidenta PAE\u00a0v slovenskom jazyku:<\/p>\n

Re: Spolupr\u00e1ca na celoeur\u00f3pskom projekte<\/p>\n

 <\/p>\n

V\u00e1\u017een\u00e1 pani, v\u00e1\u017een\u00fd p\u00e1n,<\/p>\n

T\u00fato v\u00fdzvu na spolupr\u00e1cu\u00a0V\u00e1m adresujeme v mene\u00a0Pain Alliance Europe (PAE) –\u00a0zdru\u017eenia\u00a041 eur\u00f3pskych organiz\u00e1ci\u00ed pacientov, ktor\u00fdch \u010dinnos\u0165 s\u00favis\u00ed so sk\u00faman\u00edm\u00a0fenom\u00e9nu bolesti\u00a0bez oh\u013eadu\u00a0na to, \u010do ju sp\u00f4sobuje.<\/p>\n

 <\/p>\n

PAE zdru\u017euje\u00a0pr\u00edspevky svojich \u010dlenov\u00a0tak, aby vyznievali ako jednotn\u00fd hlas.\u00a0Organizuje tie\u017e svoju \u010dinnos\u0165 na eur\u00f3pskej \u00farovni, a\u00a0sna\u017e\u00ed sa, aby\u00a0ot\u00e1zky pacientov boli vypo\u010dut\u00e9 rozhodovac\u00edmi org\u00e1nmi\u00a0v (EU)\u00a0a aby boli zahrnut\u00e9 do s\u00fa\u010dasn\u00fdch,\u00a0ako aj\u00a0bud\u00facich polit\u00edk\u00a0(EU).<\/p>\n

 <\/p>\n

Jedn\u00fdm z na\u0161ich u\u017e zn\u00e1mych projektov je prieskum chronickej bolesti, ktor\u00fd PAE organizuje \u00a0spolo\u010dne so svojimi \u010dlenmi a prostredn\u00edctvom ktor\u00e9ho konzultuje s pacientmi\u00a0\u00a0r\u00f4zne\u00a0aspekty\u00a0ich bolesti.<\/p>\n

 <\/p>\n

Prieskum pre rok 2019, spusten\u00fd\u00a0ofici\u00e1lne tento t\u00fd\u017ede\u0148,\u00a0sa zaober\u00e1 stigmou t\u00fdkaj\u00facou sa stavu pacienta v s\u00favislosti s boles\u0165ou,\u00a0ktorou trp\u00ed.\u00a0\u00a0Prieskum je dostupn\u00fd v nasleduj\u00facich jazykoch:<\/p>\n

 <\/p>\n

 <\/p>\n\n\n\n\n\n\n\n\n
Rak\u00fasko<\/td>\nF\u00ednsko<\/td>\nMalta EN<\/td>\nSlovinsko<\/td>\n<\/tr>\n
Belgicko\u00a0FR<\/td>\nFranc\u00fazsko<\/td>\nHolandsko<\/td>\n\u0160panielsko<\/td>\n<\/tr>\n
Belgicko NL<\/td>\nNemecko<\/td>\nPo\u013esko<\/td>\n\u0160v\u00e9dsko<\/td>\n<\/tr>\n
\u010cesk\u00e1\u00a0republika<\/td>\nGr\u00e9cko<\/td>\nPortugalsko<\/td>\n\u0160vaj\u010diarsko\u00a0NJ<\/td>\n<\/tr>\n
Cyprus GR<\/td>\n\u00cdrsko<\/td>\nRumunsko<\/td>\nSpojen\u00e9 Kr\u00e1\u013eovstvo<\/td>\n<\/tr>\n
Taliansko<\/td>\nSlovensko<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n

 <\/p>\n

 <\/p>\n

Dovo\u013eujeme si t\u00fdmto po\u017eiada\u0165 v\u0161etky organiz\u00e1cie pacientov\u00a0(a in\u00e9 organiz\u00e1cie, ako aj \u00a0jednotlivcov), aby podporili \u0161\u00edrenie prieskumu, aby tak zozbieran\u00e9 odpovede\u00a0mohli by\u0165\u00a0reprezentat\u00edvne pre v\u0161etky krajiny, \u010d\u00edm sa prispeje\u00a0k silnej\u0161iemu v\u00fdsledku a\u00a0k relevantnej\u0161\u00edm \u010d\u00edslam, ktor\u00e9 tvorcovia polit\u00edk\u00a0v EU\u00a0nem\u00f4\u017eu ignorova\u0165.<\/p>\n

 <\/p>\n

V\u00fdsledky prieskumu bud\u00fa prezentovan\u00e9 v Eur\u00f3pskom parlamente v j\u00fani 2019, v r\u00e1mci \u010dinnosti z\u00e1ujmovej skupiny MEP zaoberaj\u00facej sa \u010dinnos\u0165ou mozgu, mysle\u00a0a fenom\u00e9nom bolesti.<\/p>\n

 <\/p>\n

Ak sa\u00a0rozhodnete podie\u013ea\u0165 na \u0161\u00edren\u00ed prieskumu, plyn\u00fa pre V\u00e1s nasledovn\u00e9 v\u00fdhody:<\/p>\n

Ako organiz\u00e1cia pacientov budete m\u00f4c\u0165 vyu\u017e\u00edva\u0165 v\u00fdsledky prieskumu pre Va\u0161u krajinu na n\u00e1rodnej \u00farovni. Po\u0161leme v\u00e1m spr\u00e1vu o v\u00fdsledkoch vo Va\u0161ej krajine a tento dokument v\u00e1m m\u00f4\u017ee sl\u00fa\u017ei\u0165 na prezent\u00e1ciu situ\u00e1cie n\u00e1rodn\u00fdm zdravotn\u00edckym org\u00e1nom alebo in\u00fdm in\u0161tit\u00faci\u00e1m, s ktor\u00fdmi spolupracujete a od ktor\u00fdch z\u00e1vis\u00ed zlep\u0161enie situ\u00e1cie Va\u0161ich pacientov.<\/p>\n

 <\/p>\n

Na po\u017eiadanie V\u00e1m m\u00f4\u017eeme zasla\u0165 spr\u00e1vy o v\u00fdsledkoch prieskumu v jednotliv\u00fdch krajin\u00e1ch z predch\u00e1dzaj\u00facich prieskumov: Chronick\u00e1 boles\u0165 – diagnostika a pr\u00edstup k lie\u010dbe (2017) a boles\u0165 a V\u00e1\u0161 pracovn\u00fd \u017eivot (2018). Kompletn\u00e9 spr\u00e1vy n\u00e1jdete na na\u0161ej webovej str\u00e1nke: https:\/\/www.pae-eu.eu\/surveys\/.<\/u><\/a><\/p>\n

 <\/p>\n

V pr\u00edpade ak\u00fdchko\u013evek ot\u00e1zok s\u00favisiacich s touto \u017eiados\u0165ou sa m\u00f4\u017eete obr\u00e1ti\u0165 na na\u0161u webov\u00fa str\u00e1nku www.pae-eu.eu<\/u><\/a>, alebo n\u00e1\u0161 sekretari\u00e1t:\u00a0info@pae-eu.eu <\/u><\/p>\n

 <\/p>\n

Te\u0161\u00edme sa na spolupr\u00e1cu v z\u00e1ujme v\u0161etk\u00fdch pacientov trpiacich boles\u0165ou\u00a0a \u017eij\u00facich v Eur\u00f3pe.<\/p>\n

 <\/p>\n

S pozdravom,<\/p>\n

Joop van Griensven<\/p>\n

Prezident Pain Alliance Europe<\/p>\n

president@pae-eu.eu<\/p>\n

\"\"<\/a> \"\"<\/a> \"\"<\/a><\/p>\n

Odkaz na prieskum v sloven\u010dine: https:\/\/www.surveymonkey.co.uk\/r\/Slovensko-PAE-bolest-a-stigma<\/u><\/a><\/p>\n

 <\/p>\n

Odkaz na prieskum v \u010de\u0161tine: https:\/\/www.surveymonkey.co.uk\/r\/Cestina-PAE-bolest-a-stigma<\/u><\/a><\/p>\n

 <\/p>\n

 <\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

BOLES\u0164 A STIGMA: EXISTUJE TU S\u00daVISLOS\u0164? SEN Slovensko a \u010cesko v spolupr\u00e1ci s PAE sa stalo s\u00fa\u010das\u0165ou celoeur\u00f3pskej iniciat\u00edvy prieskumu sk\u00famaj\u00faceho boles\u0165 a stigmu. Mil\u00ed priatelia,   Pain Alliance Europe (PAE)- organiz\u00e1cia na celoeur\u00f3pskej \u00farovni\u00a0s dosahom na EU,\u00a0v spolupr\u00e1ci s na\u0161ou organiz\u00e1ciou \u201eSEN Slovensko a \u010cesko\u201c organizuje na Slovensku\u00a0a\u00a0v \u010cR prieskum zameran\u00fd na existenciu mo\u017enej […]<\/p>\n","protected":false},"author":27,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_uf_show_specific_survey":0,"_uf_disable_surveys":false,"_genesis_hide_title":false,"_genesis_hide_breadcrumbs":false,"_genesis_hide_singular_image":false,"_genesis_hide_footer_widgets":false,"_genesis_custom_body_class":"","_genesis_custom_post_class":"","_genesis_layout":"","footnotes":"","jetpack_post_was_ever_published":false},"categories":[1],"tags":[],"class_list":["post-600","post","type-post","status-publish","format-standard","category-uncategorised","entry"],"yoast_head":"\nV\u00fdzva na \u00fa\u010das\u0165 v prieskume o bolesti a stigme. - SEN Slovensko a \u010cesko<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.spiritualemergencenetwork.org\/slovakia\/blog\/2018\/12\/09\/600\/\" \/>\n<meta property=\"og:locale\" content=\"sk_SK\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"V\u00fdzva na \u00fa\u010das\u0165 v prieskume o bolesti a stigme. - SEN Slovensko a \u010cesko\" \/>\n<meta property=\"og:description\" content=\"BOLES\u0164 A STIGMA: EXISTUJE TU S\u00daVISLOS\u0164? 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